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#101366 - 01/02/07 12:46 AM do you have any experience or knowlage about this?
celtic_flame Offline


Registered: 11/24/06
Posts: 2930
Loc: Belfast/Northern Ireland
Ireckon you lady’s have a wealth of experience so wondered if you could shed some light on this problem.

The Gynicologist appontment showd i had cyst on overies via internal ultrasound. Doc said that explained miscarriage history and heavy ness of period and gave me 3 options

1 a marina it's a type of coil that gives out progesterone to the womb cutting back the bleeding and allegedly treating the pollycyctick.
2 whole body hormone treatments, last I tried that I seem to be over sensitive tried two different types and got so very very physically sick (I was early twenties)
3 third options are just to have the whole surgery and have the lot removed. Not nice and certainly stop the more kids.

I am about the end of my tether because I spend about 3 weeks going throw hell every month, PMT wild and about all I can do is try to curtail or ignore my feeling gets confusing trying to act out on nothing and ignore all the feelings. I have no trust in them and I hate that. The pain is hell I have bad back and pelvis injuries/trouble and the pain increases. I bleed for a fortnight the first week is like a light normal period the second is horrendously heavy and the cramps are similar to first stages labour. I also have flushes that soak my hair etc I hate seeing the effects this has on po and the child doesn’t know what has changed with me.

I have to get a general anaesthetic think they cheeking for endometriosis when they fit the 1st option

The real live experience I have asked the very few 1 person I asked and 1 po asked is not good saying the mood etc got worse. I just so lost on this matter, my pre-op 15th of January and then the procedure and as you know I getting married on the 1st February.

I am worried that it doesn’t work I know its painful after and one is meant to bleed for about six weeks great (honeymoon Time eh) if it doesn’t work then I am getting married amongst or at the height of the PMT madness, which is going on now....

So that’s the story in detail, worries and all. The help I would appreciate from any of you ladies is do you know of this condition? Have you heard of the Marina or something similar was it any good or do you know others that have tried it and what was their experiences? If that doesn’t work then do you know what else works? Oh last main point is i have a lot of the indicaters for being progestorone sensitive but as yet their no test for sensitivity to homones
celtic_flame
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"Our attitude either gets in the way or creates a way," Sam Glenn

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#101367 - 01/02/07 12:56 AM Re: do you have any experience or knowlage about this? [Re: celtic_flame]
Saundra Offline
Member

Registered: 11/18/05
Posts: 1796
Loc: Daytona Beach, Florida
Celtic, in my youth I had cysts on both ovaries at the same time, of course). There's a name for it, but I can't remember because I'm not young anymore. My gyn put me on birth control pills to disolve them and it worked!
_________________________
What I know for sure is that it's all connected.
Saundra Goodman
Got Teeth? A Survivor's Guide
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#101368 - 01/02/07 01:22 AM Re: do you have any experience or knowlage about this? [Re: Saundra]
CrosstitchQueen Offline
Member

Registered: 09/20/05
Posts: 477
Loc: Sanford, Florida
Are you thinking of Polycystic Ovarian Syndrome? Lots of info about that on the internet.
I never heard of the marina coil so can't help with that.....when I was diagnosed with cysts on my ovaries and a uterus full of fibroids I was hopeful that my doc would prescribe hormones but that wasn't the case.....they felt that a hysterectomy would be the better choice for me.
I had a total hyst almost 6 years ago and I have to tell you that for me it was one of the best decisions I ever made.....I had terribly heavy painful periods, would have horrible cramps for a week to 10 days before my period started and then another week of misery while I was actually having my period. My quality of life improved a whole lot after my surgery. I'm not trying to influence your decision here......just telling you my own experience.
I take hormones daily and feel great most of the time. But this is a decision only you can make......I know it's a confusing, scary time and wish you all the best.
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#101369 - 01/02/07 01:31 AM Re: do you have any experience or knowlage about this? [Re: CrosstitchQueen]
Saundra Offline
Member

Registered: 11/18/05
Posts: 1796
Loc: Daytona Beach, Florida
I remember ... bi-lateral phenomena. Go figure! In later years I experienced terrible cramps and naseau(sp? help me) with every period. I was given pills that eased everything. A few years later both the cramps and naseau stopped but the periods kept coming until I was 50. Then I was liberated!
_________________________
What I know for sure is that it's all connected.
Saundra Goodman
Got Teeth? A Survivor's Guide
www.gotteethguide.com for your Free Tips

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#101370 - 01/02/07 01:35 AM Re: do you have any experience or knowlage about this? [Re: Saundra]
Princess Lenora Offline
Member

Registered: 11/11/04
Posts: 3503
Loc: Colorado
Dear Celtic, I am so sorry for what you endure each and every month. I don't know anything about a coil. I can tell you my experience and see if anything I say helps you. First of all, as far as trusting, if you don't trust THEM then put your trust in the guidance of God to guide them to treat you with the best intentions to make you whole and well. Second of all, I could never get pregnant, no matter that I was erratic with birth control. When I was 38 I thought I was pregnant. Gleeful, my h and I went to the GYN to discover that I was not and could not get pregnant. It turned out that I had had endometriosis for 18 years, based on the scar tissue. If I had gotten pregnant, GYN said, then I would have miscarried because of endometriosis. Removing the scar tissue helped a lot with subsequent menstruation. As for hormones, I was off my rocker with progesterone. I was supposed to take it for 7-10 days, and I took it for 2 and put the rest down the toilet. The P made me bloated, fatiqued, anxious, raging, and eat like a horse. However, there are newer kinds of Pro now then before. What you call PMT is probably PMS or PMDD. I had PMDD, a severe form of PMS. I was evaluated for bi-polar, and it turned out that I had pre-mestrual dysfunction disorder or whatever it is. Pre menstrual syndrome. The syndrome lasted 2-3 weeks, so I had about a 10 day good time each month. Finally when I was about to get fired for mood swings in 1994, ("No one knows what to expect from you," my boss said ) an endocrinologist and hormone specialist put me on Zoloft, and it changed my life. Sure, I still had PMS and mood swings, but not as severe. The Zoloft was a mood modifier. In my forties, I had cancer. The chemo therapy caused "chemical menopause." and my menstruation stopped forever, and so did the mood swings, cramps, and most migraines. What have you tried for the mood swings? Would surgery alleviate all symptoms? I wish you lots of luck and good hands that can help you.

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#101371 - 01/02/07 01:36 AM Re: do you have any experience or knowlage about this? [Re: CrosstitchQueen]
celtic_flame Offline


Registered: 11/24/06
Posts: 2930
Loc: Belfast/Northern Ireland
thanks Polycystic Ovarian Syndrome thats the name but couln't spell it. |Its a big delema i give anything to be free of this, even for a while it runs me down and my emotions all over the place, it's getting worse and i surviving it instead of living my life......the bigest thing is I love another child for myself and especilly for the wee one i have, i trying to do what i humanly can but know the rest in gods hands...something i have big troubvle surenderring over thgis is one of those tricky subjects...i also running out of time for having another child, if infact i am not already too late. I keep think im resolved to no more kids then a big broady spell takes over. Ah well!

celtic_flame
_________________________
"Our attitude either gets in the way or creates a way," Sam Glenn

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#101372 - 01/02/07 01:52 AM Re: do you have any experience or knowlage about this? [Re: celtic_flame]
celtic_flame Offline


Registered: 11/24/06
Posts: 2930
Loc: Belfast/Northern Ireland
hi lynne
pre-mestrual dysfunction disorder or whatever it is. Pre menstrual syndrome. The syndrome lasted 2-3 weeks, so I had about a 10 day good time each month.Lynnes quote...

i never heard of this and yes pmt is pms in your country just diffrent names the pmdd i have never heared of but the symptomes sound very familure, i have 1 week out the mounth the the slow start of a mood that builds till it's preatty horrible. Since i was in early 20's i made rules during pmt time, no leaving work, no leaving relashionships and no leaving the contry. Sounds bonkers but i could't trust my thiking and or decisions i made so decided not to do anything major. Its just with time the pmt period and mood get's more extreem and the durasion gets longer, i am still using the same stratigy about not making major changes but it's hell. Then one day i wake up and i feel and act normal i got me back....if it wasen't for po i would't have a clue about this stuff...she intriduced a menstrasion diary told me to write it down,found regulare and pridictible patterns and help me belive/understand the role of hormones and the pradictibility of it all...I still responcible for my actions ofcourse but know and underastand myself and the role hormones can play in one's life.... god love her she know in her head when and wear i am in my cycle couse sometimes i am the last person to know, untill it's obviouse i not thinking how i normally think...

thanks ladies and especilly lynne for this new slant on things
celtic_flame
_________________________
"Our attitude either gets in the way or creates a way," Sam Glenn

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#101373 - 01/02/07 02:29 AM Re: do you have any experience or knowlage about t [Re: celtic_flame]
DJ Offline
Member

Registered: 11/22/02
Posts: 1149
Loc: Ohio
Celtic,
I had some really bad symptoms and with a lot of determination cured myself in about 6 months. First, read John Lee's web site if it's still there, or his books "What your doctor doesn't tell you about menopause" and "What your doctor doesn't tell you about pre-menopause." His theory is about estrogen dominance which you can get not just from directly taking estrogen, but from all sorts of environmental factors, like hormones in the food, water, and chemicals in the environment and cleaning supplies.
I got Arbonne progesterone cream, and radically changed my diet to eliminate all meat and dairy that contained hormones, and all produce that wasn't organic. Doing this, I felt better in a few weeks, and actually cured several ovarian cysts, all my fibroids,and eliminated pain, cramping, and heavy periods. My gynie actually yelled at me when I came back with a clean sonogram after 6 months. She said "I didn't authorize you to take progesterone cream -- if anything happened, I could've been sued." So needless to say, I changed gynies. My guess is that she was hoping to make a bundle by removing my uterus and pay for her ski trips.
By the way, the progesterone cream form Arbonne comes out in measured doses and goes on your skin. The pills are something else all together. The drug companies are trying to find ways to make money off of progesterone so they're always trying to "improve" it, which isn't possible. They can't make money off of natural progesterone. This isn't the same as "progestin." -- that's a chemical. Also, I don't trust bio-identical hormones either.



Edited by DJ (01/02/07 02:32 AM)
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#101374 - 01/02/07 04:19 AM Re: do you have any experience or knowlage about t [Re: DJ]
Dancing Dolphin Offline
Member

Registered: 03/06/06
Posts: 2529
Loc: Southern California
I did a little online research on the mirena coil. Here's the manufacturer's site:

http://www.mirena-us.com/index.html?c=S1&WT.srch=1

Some useful medical info and warnings:

http://www.netdoctor.co.uk/medicines/100001706.html

And some comments from users of the coil:

http://www.eumom.com/ie/forum/topic.asp?TOPIC_ID=22588

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#101375 - 01/02/07 08:09 AM Re: do you have any experience or knowlage about t [Re: Dancing Dolphin]
Lola Offline
Member

Registered: 06/23/06
Posts: 3703
Loc: London UK
Hi, Celtic: PMT is the American counterpart for PMS. It's just a case of tomayto, tomahto.

I've had total hysterectomy earlier second quarter of last year. My initial symptoms were profuse bleeding and pain. Just like yours. In just one year, the bleeding had caused severe anemia and my blood count plummeted to 4 and 6 and was put on iron supplements to get the levels to hover at 11 and 12. Has profused bleeding cause you to be anemic?

Anemia brought about a whole lot of problems for me and as a result, the GP recommended a full medical checkup. The scans showed an ovarian fibroid/tumour measured at 10cm. The first procedure I had before operation was a hysteroscopy and a C125 to determine whether growth was cancerous. Hysteroscopy also involved a procedure which made heavy bleeding cease for at least a few months. That helped get the bloodcount to an acceptable level.

Total hysterectomy was advised because I was 49 then, divorced and childbearing was not in any way going to be a possibility because of age and status. So, the decision for hysterectomy was quite easily agreed upon and surgery was scheduled six weeks after hysteroscopy. My post-op recovery was progressive and had no complications at all and was the best that could be done under the circumstances. Except for insomnia and a minor hot flush here and there, I find surgical menopause quite manageable. I opted out of HRT as well. My Dr and daughter, who is also a medical professional although not in Gyne, advised against it in the first place and suggested countering any menopausal symptoms that may arise with proper diet.

If the option for surgery is considered by the Gyne then you'd have to weigh the outcome of that against medication, which you have already mentioned you have reacted badly to, or any alternative remedies. From what I have been told by my Gyne about cysts/fibroids, these can reduce in time in some cases but do not disappear entirely. And in some cases, there could also be further growth, so more discomfort. So, that was another factor I had to consider. From the time my growth was scanned at 10cm (which compares to the size of our computer mouse), it had grown to the size of a grapefruit when the Dr finally got it out.

You have a pre-op for the 15th? Whatever you decide upon regarding your course of treatment, rest assured we are here to support you with our own experiences. Mine was through the surgical option.
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