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#162593 - 10/14/08 07:18 AM Re: Possible Great News! The Mayo Clinic Called [Re: meredithbead]
Dotsie Offline
Founder

Registered: 07/09/08
Posts: 23647
Loc: Maryland
Anno, wow, what a roller coaster. Looking forward to hearing the results of the next test with you.
_________________________
Founder Emeritus of Boomer Women Speak and the National Association of Baby Boomer Women.
www.nabbw.com
www.boomerwomenspeak.com


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#162640 - 10/14/08 04:26 PM Re: Possible Great News! The Mayo Clinic Called [Re: Dotsie]
gims Offline
Member

Registered: 01/16/07
Posts: 3404
Loc: USA
It feels as if we are living this with you. I'm counting on hearing even more good news... take care. We love you.

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#162660 - 10/14/08 06:37 PM Re: Possible Great News! The Mayo Clinic Called [Re: gims]
Anno Offline
Member

Registered: 09/15/05
Posts: 4434
Loc: Minneapolis Minnesota
I want to first say, how much I miss all of you. I was able to spend so much time here, last spring and this summer, and now I am barely able to find the time to respond to all of your kid and loving words.

Yes, good news was given to us, but I am taking it in with caution. Dennis is still very ill, we just don't know the name of his problem. I want to believe that he will be here with me FOREVER!, but I need to ground myself in realism, too.

Meredith, I think you are right on. I am so blessed to have so much love to share with someone that loves me, too. Miracle, or hard work, or just plain luck - I do feel blessed.
_________________________
Follow our story of living, loving and laughing with a debilitating disease:

http://www.multiplesystematrophyandshy-drager.blogspot.com

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#162665 - 10/14/08 07:14 PM Re: Possible Great News! The Mayo Clinic Called [Re: Anno]
Mama Red Offline


Registered: 08/12/08
Posts: 676
Loc: Wauconda, IL
Hi Anno

Goodness, what a roller coaster ride you are on. This is one of those times when I wish I something pithy and powerful to say...and what I *can* say is you are in my prayers, as is Dennis and his doctors. I am praying they are wise and talented and thoughtful and compassionate and filled with Spirit.

It is never easy to see someone we love suffering, is it? Know you are loved and cared for, always.
_________________________
Love and light, hugs and blessings

MamaRed (Jerilynne)
www.mamaredspeaks.com
www.onemillionacts.com
Coming Summer 2009 "Kick-Butt Kindness: 52 No Cost Ways to Ripple Kindness 'Round the World"

Let's create Kick-Butt-and-Take-Names Lives!

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#162672 - 10/14/08 08:25 PM Re: Possible Great News! The Mayo Clinic Called [Re: ]
jawjaw Offline
Da Queen

Registered: 07/02/03
Posts: 12025
Loc: Alabama
Anno, come in when you can, but know we're right there at the grocery store with you, right there at the test, wherever...

Your blog keeps our connection strong and I thank you kindly for taking the time to write it.

What a book it is going to make.

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#162691 - 10/14/08 10:41 PM Re: Possible Great News! The Mayo Clinic Called [Re: jawjaw]
Princess Lenora Offline
Member

Registered: 11/11/04
Posts: 3503
Loc: Colorado
Anno, from you last post here, it sounds like you were brought together for a reason. Sounds corny, I know, but no doubt. I hope your forever is indeed forever...and ever

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#162712 - 10/15/08 04:27 AM Re: Possible Great News! The Mayo Clinic Called [Re: Princess Lenora]
Edelweiss2 Offline


Registered: 09/09/08
Posts: 779
Loc: American living in Germany
I just read that you are planning to go to London again with Dennis?

Well now you know what to expect and you know the ropes, so to speak. I’m amazed how you do all this. Wonder woman comes to mind. Anyway I think it is wonderful to look forward to something, and it may be the best medicine Dennis could have. No no, wait; the best medicine is YOU.
_________________________
A friend is a gift you give yourself.
-- Robert Louis Stevenson

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#162795 - 10/15/08 07:08 PM Re: Possible Great News! The Mayo Clinic Called [Re: Edelweiss2]
Anno Offline
Member

Registered: 09/15/05
Posts: 4434
Loc: Minneapolis Minnesota
You are all so sweet. I love each of you!

Yes, we are going to visit my sister and BIL in London, again. We are also going to get a hotel in Central London - and we plan on meeting up with Poppie and Lola, again. Anyone else want to join us?

Dennis' love of travel is equal to my own. While it wears the heck out of him to travel, he lives for it. He also knows it is so important for me and he will do almost anything to ensure that I get my needs met.

So travel, while tons of work, keeps us happy.

I am not a wonder woman. I am only doing what each of you would do, were the circumstances the same. And that is the truth.
_________________________
Follow our story of living, loving and laughing with a debilitating disease:

http://www.multiplesystematrophyandshy-drager.blogspot.com

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#162847 - 10/16/08 08:06 AM Re: Possible Great News! The Mayo Clinic Called [Re: Anno]
Dotsie Offline
Founder

Registered: 07/09/08
Posts: 23647
Loc: Maryland
Anno, you are such an inspriation, and so is Dennis. I admire both of you for continuing to live fully in the midst of his illness. London? That's fantastic. So glad that travel also gives you something grand to look forward to. That's so important.
_________________________
Founder Emeritus of Boomer Women Speak and the National Association of Baby Boomer Women.
www.nabbw.com
www.boomerwomenspeak.com


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#171700 - 01/17/09 10:13 AM Re: Possible Great News! The Mayo Clinic Called [Re: Dotsie]
Anno Offline
Member

Registered: 09/15/05
Posts: 4434
Loc: Minneapolis Minnesota
More new news! And great news, at that.

Next week Dennis and I are headed to the Mayo Clinic for one more test. This is the radio=active test I mentioned earlier. We were scheduled for December, but Dennis decided he wanted more time to consider the test. We are hoping this test will rule out Shy-Drager and thereby remove his death sentence.

In addition, the nuerologist and his team, that heads up this research, has decided that Dennis will be one of the 5 patients each year that they see outside of this particular research.

We have an appointment on January 27 and we have been told to pack for up to 10 days. We may be sent home on the 27th, may be put into a hotel, or Dennis may be admitted to the hospital for closer observation.

Hold onto your hats, gals. I believe I may be innundating you with lots of news over the next two weeks.

Love to you all.
_________________________
Follow our story of living, loving and laughing with a debilitating disease:

http://www.multiplesystematrophyandshy-drager.blogspot.com

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