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#151210 - 06/14/08 10:08 AM Re: Mourning a loss [Re: jabber]
Mountain Ash Offline
Member

Registered: 12/30/05
Posts: 3027
A wee dram

yes a small glass of whisky.

my husband has a boyish humour..even the cartoon in the daily paper..and when political satire is on the radio he laughs at the joke so much he doesn't hear the next one.
Mountain ash

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#151211 - 06/14/08 02:08 PM Re: Mourning a loss [Re: jabber]
chatty lady Offline
Writer

Registered: 02/24/04
Posts: 20267
Loc: Nevada
I have been where you are Anno, and watched my young husband waste away so fast with a terminal disease. God, prayer and laughter got me through it all. Living in the day is the best advice. Last night I rented and watched a movie called THE BUCKET LIST with Jack Nicholsen and Morgan Freeman, its about two men in their later years, both terminally ill, and they make a list of things to do before they kick the bucket. I never laughed so hard, and cried too, I bet Dennis woulds enjoy it, I know my Eddie would have...Praying for you both.
_________________________
Take a peek at my BLOG:

http://charleen-micheles.blogspot.com/


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#151212 - 06/14/08 02:25 PM Re: Mourning a loss [Re: Mountain Ash]
Lola Offline
Member

Registered: 06/23/06
Posts: 3703
Loc: London UK
Gabriel passed away nearly 15 months ago, Anno. He was 7 1/2 months old and was born with holoprosencephaly alobar. My niece was told that the baby would be born with severe disabilities. The entire family looked forward to his birth and prepared for his care. Gabriel was blind and deaf. He also fed through nasal tubes. That did not stop my niece from taking him out to the parks. Even when people gawked because Gabriel also had a facial deformity. He was born without a nose and had a wide cleft where his tubes entered.

Despite the immense hardship which came with the care of a child who was physically unresponsive, except for seizures which increased in frequency and duration: not to mention that his life would be short, not to mention the "what ifs" brought about by the presence of other children in our big family, my niece and my sister lived each day as it was blessed them. The present kept them busy enough with Gabriel that to think of the yesterdays and the tomorrows would have been an overload. Gabriel's life was lived in a succession of present days.

My niece can no longer have children but continues to live in the grace of present moments and tries not to take up residence in it because it passes so quickly into the past. Where the future is not today, she entrusts to God.

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#151213 - 06/14/08 03:31 PM Re: Mourning a loss [Re: Lola]
Edelweiss Offline
Member

Registered: 06/05/06
Posts: 4136
Loc: American living in Europe
Yes, Anno, I have experienced mourning a loss before it actually happened. And I have experienced the fear of seeing my father suffer under great pain and how our family coped with it.

That was when my father was so very ill. I cried day and night, seeing this man who I had held high up on a pedestal become less and less each day. He represented strength, intelligence, and love for me. I thought I would die when he passed away. But that didn’t happen. And although I mourned when he died, I didn’t mourn as intensely as I did while he was alive.

I think mourning before a loved one dies, is a way of saying good-bye. It’s a way of learning to let go. And when that time does come, I hope for you that peace and quiet will surround you, and at the same time lift you, as it did for me.

My father’s death was not the end; it was the time for a new beginning. It’s all a cycle.

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#151214 - 06/14/08 04:32 PM Re: Mourning a loss [Re: Edelweiss]
Anno Offline
Member

Registered: 09/15/05
Posts: 4434
Loc: Minneapolis Minnesota
Chatty, I have thought about you often during this past year and how it must have been for you when your husband died. Yes, laughter suits me well. I am so happy that Dennis has that "boyish" humor, as Mountain Ash says, because he can make me groan and laugh at the same time.

Lola, that story is full of dignity and love. And a good model to follow. Thank you for sharing your story.

Edelweiss, the most difficult for both of us, is watching Dennis be treated with less respect than before all of this began. He, too, was a man with a high ranking position for years, and now some people look at him and talk to him as though he is an imbicile (his word). It's tough watching him deteriorate.

Live happy and live in the moment. Pray and meditate and live fully. That is what I will take from this discussion. Thank you all, once again, for helping me out of my funk. You gals are terrific.
_________________________
Follow our story of living, loving and laughing with a debilitating disease:

http://www.multiplesystematrophyandshy-drager.blogspot.com

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#151215 - 06/15/08 04:33 AM Re: Mourning a loss [Re: Anno]
Mountain Ash Offline
Member

Registered: 12/30/05
Posts: 3027
So much is unfolding on the forum at this time.
My life is like that Good things come in threes'

Anticipating parting is a big hole.

In order to cope we all adopt personal strategies.

Anno I know you will manage..and you way is stop on for you.Paris...love and Dennis.Then plan the next visit.

One 17 year old girl was in the last stage..of cancer.she was scheduled to sit exams.Cooking was one I did with her.She was lossing her sight.Cuting veg. was way off.But together we made her test piece.Because we went through the usual procedure.I did this in a classroom just D. and I.
The other staff asked how I managed.It was pitiful This girl was high IQ and had fought so hard to live.
I managed because my gift for to give her normality..not to kid her.pretend.The normality enhanced her life.Actually I was able to do thi with no bother.Yes I had deep feeling inside but like a nurse isnt sicked by poo etc..I just cope in that situation.

This time on the forum is transiant.Soon we will be taliking about other thing.Lighter things.
But I think of Chatty wo has been there done that.Of Humlan who too has walked that road.And others.. Thats what Boomer women are..living legends.
Mountaina ash

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#151216 - 06/15/08 12:56 PM Re: Mourning a loss [Re: Anno]
humlan Offline


Registered: 04/15/07
Posts: 1341
Loc: Sweden
Anno..hello! Now why did I check into the forum today? Did I hear you somewhere in my muddled brain/heart? I am cleaning my apartment after my son´s departure..reinstating my kitchen..listening to music like Shaggy and Janis Joplin (CRY)..and drinking vodka..probably time to check in to the AA ..

Anno..I am enveloping you in big big warm bear hugs..and I am sort of big and mushy..so you are getting smothered here Your funk is over now..as you wrote..and this is the what it is..it comes and goes. But LISTEN..FEEL your dear loved Dennis. He is with the angels..he has lots of them around him all the time. And they KNOW. with him, what is important and what is happening... Are you living by the hour or by just 15 minutes at a time? It´s a gift to be so near to someone that you love that lives on so many levels..that levels that you and I can only experience with them. I wanted to recapture that time later..but I never could. I guess that I am like everyone else now..stressed out and trying to make sense of life. But there was a time..when I had an angel in my life..and she showed me heaven..with her joy, gentleness and great great unconditional love. I was tired sometimes with 3 other children..I wasn´t always all that I wanted to be..but she loved me and saw my sadness..in my eyes: You smile, mommy..but your eyes don´t look happy. And then, a few days before her death..she called me from the hospital in the middle of my hectic day and told me: Mommy..don´t worry..God will take care of me.

These moments are precious..soo precious...and the dreams I had of our future together..as mother and child..were NOTHING compared to what she gave to me..NOTHING! I still don´t know how to dream they way she could..and the way she showed me.

Your dear Dennis is a messenger from heaven..he has always been just that, my dear dear Anno. And you have been blessed to receive him. And this is your dream..has always been your dream. Without the excruciating pain that you feel in the dark moments of the night..without that..you would never be able to grasp and make your own..what Dennis is giving you now. And you, him.

Dream new dreams, my dear Anno..but don´t resist your pain and your tears..they are a part of those dreams. It helps you to touch the angels..and my tears are rolling down my face..mixed with incredibile pain and joy.

All my love..humlan
_________________________
"some sacred place.."

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#151217 - 06/15/08 01:39 PM Re: Mourning a loss [Re: humlan]
humlan Offline


Registered: 04/15/07
Posts: 1341
Loc: Sweden
Anno..hello again..Enja is playing..Who Can Say?..we have a cd player that plays selections from 25 cds at random..on one side we have my partner´s death metall selections and music from the 40´s..real blues..and on my side Janis, Enja, Springsteen and Metallica, ACDC..quite a mix, right?

Anyhoo..you know, Anno..Dennis will never truelly leave you. Matter cannot just disappear..the famous scientists have confirmed this. Dennis will be in your midst always..and in your heart. He will be in the trees..in the song of the birds..in the rush of the rivers..or the quiet of a sunset..he will be playing among the children in a park..and he will be sitting alongside some kid trying to fix his computer. He cannot just go away..nothing..nothing does that. We are drinking water that the dinasauers drank..the circle of life..my dear dear Anno. He will be in your flowers..and in the sent of them. He will come to you in your dreams..and he will help your heart beat..as he always has.

LOVE LOVE LOVE..LIFE LIFE LIFE!!! And he loves life, doesn´t he? Despite everything...
_________________________
"some sacred place.."

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#151218 - 06/15/08 01:44 PM Re: Mourning a loss [Re: humlan]
Edelweiss Offline
Member

Registered: 06/05/06
Posts: 4136
Loc: American living in Europe
Anno, I know what you mean about treating a patient, who is ailing and who is not able to fend for himself, with disrespect.

Once I took a nurse aside, and fired her on the spot. I was only 23 at the time, but I would have spit fire if I could have. My Dad witnessed it, and was very proud of me. I could see it in his eyes. So that is how I handled people who were disrespectful towards him. I didn’t swallow it, I let them know. I was my Dad’s spokesman and bodyguard during his last 6 months. ( My mother didn’t have any fight left in her. She was depleted.) And I can only imagine that Dennis would swell with pride if you reprimanded anyone who has the (beep-beep) nerve to treat him like an ‘imbicile’.

I’m sending you big sisterly hugs that give you strength and determination to pull this through as well as you can. Just don’t forget yourself in the process. And allow anger, bewilderment and sorrow to enter your life as well. You need that as an outlet. Life takes the course it wants to anyway, no matter how you handle it. It’s just a question of riding the waves as well as you can, without falling too far and too deep.

I love you, girlfriend. And if you need any help in Paris, remember, I’m just a country away.

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#151219 - 06/16/08 09:04 AM Re: Mourning a loss [Re: Edelweiss]
Anno Offline
Member

Registered: 09/15/05
Posts: 4434
Loc: Minneapolis Minnesota
Thank you Humlan for your thoughts. And such a heart wrenching story. I know you are a great mom.

Hannelore...oops...Edelweiss, come and join us for a day or two. We could have a blast! Dennis loves meeting new women.

Mountain, I agree. Time to integrate some lightness into the forums. Into life.
_________________________
Follow our story of living, loving and laughing with a debilitating disease:

http://www.multiplesystematrophyandshy-drager.blogspot.com

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