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#161979 - 10/06/08 07:59 PM Re: Possible Great News! The Mayo Clinic Called [Re: gims]
jawjaw Da Queen Registered: 07/02/03 Posts: 12025 Loc: Alabama	All aboard! The Dennis Spirit Train is leaving Tuesday night and we're all on it, Anno...we love him...and you, and we're praying for a successful, learning journey! God's speed... _________________________ Queen JJ www.queenjawjaw.com All Things Royal - 2010 and Beyond Humorist for the NABBW
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#161981 - 10/06/08 08:15 PM Re: Possible Great News! The Mayo Clinic Called [Re: gims]
Mama Red Registered: 08/12/08 Posts: 676 Loc: Wauconda, IL	Lean in darlin', lean in! We'll be here! _________________________ Love and light, hugs and blessings MamaRed (Jerilynne) www.mamaredspeaks.com www.onemillionacts.com Coming Summer 2009 "Kick-Butt Kindness: 52 No Cost Ways to Ripple Kindness 'Round the World" Let's create Kick-Butt-and-Take-Names Lives!
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#162178 - 10/08/08 04:55 PM Re: Possible Great News! The Mayo Clinic Called [Re: Mama Red]
Anno Member Registered: 09/15/05 Posts: 4434 Loc: Minneapolis Minnesota	The first day of tests is done. We spoke to two different nuerologists, and they agreed they do not have enough conclusive information to tell us much. Tomorrow's test should give them the information they believe they need. The problem is that Dennis' is not following the regular pattern of any of the diagnosis of any one disease. They think it is MSA, but then maybe it is a strange, and horrible, parkinsonian type disease. They did agree on one thing. Dennis probably has a short period of time before he becomes even more disabled. I am so glad that we are going to London in early December to visit my sister and bil. _________________________ Follow our story of living, loving and laughing with a debilitating disease: http://www.multiplesystematrophyandshy-drager.blogspot.com
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#162181 - 10/08/08 05:03 PM Re: Possible Great News! The Mayo Clinic Called [Re: Anno]
dancer9 Registered: 04/15/07 Posts: 2411 Loc: Arizona	Anno, I've been gone so excuse my lateness in posting. I read your diary with painful reaction. You must be have such a hard time. I pray there is a DX soon and you know what he is facing. Since I have a Nuero condition, I know that they are difficult to find at times and sometimes it is a matter of elimination. Oh how I suffered until they diagnosed me. In every way, a Nuero DX is hard and you must be hurting. I'm sorry, very sorry, for his pain and strife and for yours. I'd like to keep up with your progress and will keep you and your whole family in my thoughts. Godspeed, Dancer Edited by dancer9 (10/08/08 05:04 PM) _________________________ http://www.annalisanews.com/ "Question your privilege"
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#162189 - 10/08/08 06:44 PM Re: Possible Great News! The Mayo Clinic Called [Re: dancer9]
Princess Lenora Member Registered: 11/11/04 Posts: 3503 Loc: Colorado	Hi Anno, the waiting must be excrutiating. Thoughts are with you and Dennis. _________________________ "Destiny is not a matter of chance, it is a matter of choice." http://beyondthetears.blogspot.com http://www.facebook.com/lynn.tolson http://www.facebook.com/pages/Beyond-the-Tears-A-True-Survivors-Story/130880013605676
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#162268 - 10/09/08 05:15 PM Re: Possible Great News! The Mayo Clinic Called [Re: Princess Lenora]
Anno Member Registered: 09/15/05 Posts: 4434 Loc: Minneapolis Minnesota	Thank you, each and everyone of you, for being with us these past two days. Here is what I posted in my blog today. This morning, we dropped off Dennis' 24 hour collection of urine for a sodium count. No matter what you put urine in, unless you flush it down the toilet, it still smells. I was very happy to leave the jugs at the front desk, and take Dennis to his next test - the sweat box. For the sweat box, a person is stripped naked, and then covered with powder, from head to toe. You are then placed in a large plastic box, and the heat is turned up. As you begin to sweat, the powder turns from white to purple. A typical MSA/SDS patient will sweat only in patches, and large areas of the body show no signs of sweat at all. They will be spotted with purple stains. Dennis was a mass sweat producer and came out of the test completely purple. He failed this test, also. The nuerologists are fairly certain that Dennis does NOT have an autonomic disorder, or MSA. He still is diagnosed as having stage 4 Parkinson's, on a scale of 1 to 5. These doctors are sure there is something else going on, as is his local doctor. The next step is yet another test for another study. This one will rule out MSA completely, or confuse the situation even further. He also will receive a referral to a movement specialist at the Mayo, hopefully providing further insight to the progression of Dennis' situation. We both left today feeling a bit lighter. The death shroud of MSA has been lifted. Today I don't feel like asking any more questions. I simply feel like sitting here, enjoying the good news. _________________________ Follow our story of living, loving and laughing with a debilitating disease: http://www.multiplesystematrophyandshy-drager.blogspot.com
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#162269 - 10/09/08 05:15 PM Re: Possible Great News! The Mayo Clinic Called [Re: Anno]
Anno Member Registered: 09/15/05 Posts: 4434 Loc: Minneapolis Minnesota	I guess I may need to change the name of my blog! _________________________ Follow our story of living, loving and laughing with a debilitating disease: http://www.multiplesystematrophyandshy-drager.blogspot.com
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#162292 - 10/09/08 09:33 PM Re: Possible Great News! The Mayo Clinic Called [Re: Anno]
chatty lady Writer Registered: 02/24/04 Posts: 20267 Loc: Nevada	That is the best news yet. I would love to see something good in the blog about Dennis making great strides towards recovery. I never miss a night with him in my prayers. _________________________ Take a peek at my BLOG: http://charleen-micheles.blogspot.com/
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#162293 - 10/09/08 09:42 PM Re: Possible Great News! The Mayo Clinic Called [Re: chatty lady]
Mountain Ash Member Registered: 12/30/05 Posts: 3027	Anno thinking of you there ..yes just "Simply be" and trust all is unfolded like a book with a expert writer who after stormy waters takes us to calm places. Hope between times there is a place to replenish your spirit. Thats what "Maggies Place" does for cancer treatment patients and families here...every facet people need is there.even the soft furnishings and yoga/meditation spaces and coffee areas.Mostly the people who hang around to support all who enter love Mountain ash
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#162576 - 10/14/08 02:26 AM Re: Possible Great News! The Mayo Clinic Called [Re: Mountain Ash]
meredithbead The Divine Ms M Registered: 07/07/03 Posts: 4894 Loc: Orange County, California	I've just caught up with your blog again. You are amazing, Anno. Perhaps the biggest miracle of all is the love you and Dennis share. _________________________ My handcrafted jewelry: limited edition designs more jewelry, plus bead supplies Poet and essayist
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