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#10824 - 04/29/05 01:35 AM
Re: Diabetes-cinnamon
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Member
Registered: 12/21/04
Posts: 483
Loc: North Carolina
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You aren't invisible, Chatty. It's like this: I remember you telling someone about Flax Seed Oil caps. Ok, I finally broke down and bought some and ...... I can't remember what I bought them for!!! And even tho I check the forums several times a day, do you think I remembered to do a search for 'flax seed oil'? Not. I'm telling ya, it's just ol' Alz hanging out at my house. That's all. Just old Al.
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#10828 - 05/03/05 02:50 AM
Re: Diabetes-cinnamon
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Member
Registered: 11/22/02
Posts: 1149
Loc: Ohio
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Dots, last fall, maybe summer, when we were taking a walk, I told you about that article in the paper about cinnamon too! You must be distracted. I wonder why? Lion, the article I read said that having a tsp of cinnamon a day can help your body to process sugar and help ward off type II diabetes -- at least I think that's the explanation. I'm putting it in my (decaf) cappuccino in the a.m. Don't have diabetes, but I want to process those sugars!
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#10830 - 05/03/05 06:02 PM
Re: Diabetes-cinnamon
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Founder
Registered: 07/09/08
Posts: 23647
Loc: Maryland
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DJ, I remember now that you mention it. So let's see... I read about it in a magazine, you told me, AND chatty told me, but it wasn't until my friend gave me the bottle that I decided to give it a try. That's pathetic. I feel as though I was neglecting my daughter. She's taking 4 a day. We go to the doctors this month. We'll see what happens.
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#10831 - 02/04/06 06:04 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/03/05
Posts: 44
Loc: New York
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Dotsie: This is long after you wrote the bit on cinnamon but I was checking out this forum because I have Type I diabetes. I take a couple of shots a day. Strangely enough I was diagnosed with this insulin-dependent form of the disease in my early 40's. I'm not doing too well on maintaining my blood sugars even after all these years (15) so I'm willing to try the cinnamon tablets. As I read that your daughter has it, have you found any other tips?
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#10835 - 02/06/06 02:24 AM
Re: Diabetes-cinnamon
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Member
Registered: 02/19/03
Posts: 765
Loc: Oregon
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Chatty, I remembered you writing about cinnamon and when a friend told me take it in the fall I did. My numbers are sometimes better when I do. Like you I use it on my cereal in the morning. May have to try some of the other things too. Maggie
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#10837 - 02/07/06 09:43 PM
Re: Diabetes-cinnamon
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Member
Registered: 02/07/06
Posts: 37
Loc: Canada
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I was diagnosed with Type II Diabetes just this past summer. I'm so glad I read these posts! I like to put cinnamon in my coffee and I love it on toast. I'll have to try it and see if it affects my blood sugars.
It's hard for me to exercise, which is very frustrating right now. I was born with spina bifida. I'm paraplegic and use a wheelchair. I tried diet alone but it didn't help so I take Metformin (Glucophage). I'm still learning the ins and outs of this disease so any tips I can get would be appreciated.
MiwSher
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#10838 - 03/10/06 12:21 AM
Re: Diabetes-cinnamon
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Member
Registered: 11/18/05
Posts: 13
Loc: indiana USA
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i am a strange diabetic that has extreme insulin resistance like that of a type 2 and my pancreas does not make insulin like that of a type 1. cinnamon taste mighty good but does not help my sugars. chromium GTF helps some and it helps to limit the carb cravings its a natural mineral we all need anyways. i was on 7 or more shots a day and glocophage. now im on the pump and glucophage
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#10841 - 03/18/06 11:43 PM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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HELP!! Fellow Boomers, I am here to ask your advice. I belong to a group for people who either have the brain tumor, craniophayngioma, or who are caretakers. I received this email this morning, and I'm really not sure how to respond. This may be a young person who has no one else to guide her.....the message from her neuro to her gen. practioner is obvious :
HELLO I HAVE RECEIVED A LETTER FROM MY NEURO SURGEON WHAT IS A COPY OF ONE HE HAS SENT TO MY GP. IT TELLS HIM ABOUT MY GROWTH AND SAYS ON IT "AS YOU ARE AWARE OF THE HIGH MORBIDITY RATE OF THE EXCERTION OF THIS TYPE OF TUMOR" CAN ANYONE TELL ME WHAT THAT MEANS. COS WHEN I LAST SPOKE TO MY NEURO HE SAID WHEN I HAVE SURGERY AGAIN HE'S GOING FOR ALL OF IT. THANKS
Anyone care to offer me at least one good idea? Or ANY idea??? SOON ???? Can you imagine what is running thru this girl's mind?
Searcher
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#10842 - 03/19/06 12:15 AM
Re: Diabetes-cinnamon
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Member
Registered: 09/20/05
Posts: 2560
Loc: Pagosa Springs, Colorado
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Searcher, based on our PM's, I'd say go ahead and email her and ask her how old she is and if she has anyone there with her. If she's not terribly young and someone is there with her, then tell her as gently as possible and strongy recmmend that she talk to whoever is there with her. I will pray for you right now... ((HUGS))
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#10843 - 03/19/06 12:27 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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Thank you, Bluebird, I think I'll do that - guess I prob. knew that, but needed a little extra support! So scarey for her.........when I know she's already been thru hell....Thanks for the prayers...
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#10844 - 03/19/06 12:56 AM
Re: Diabetes-cinnamon
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Member
Registered: 09/20/05
Posts: 2560
Loc: Pagosa Springs, Colorado
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I'm happy to pray for this situation and we all need someone to "second the motion" sometimes. Let us know how it turns out. You're so sweet to take this on, and also so qualified.
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#10845 - 03/19/06 01:18 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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I did email her to ask if she has anyone nearby whom she trusts, and I hope I did it in a way that won't add to her fear....It sure has added to mine! Thanks again, Bluebird. O geez, this is EXACTLY why I avoided this site in the first place, you just wait, she'll have no one and then I'll feel responsible to "adopt" her and........first thing you know, she'll tell me she's having siezures and then ....perish the thought!
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#10846 - 03/20/06 04:25 PM
Re: Diabetes-cinnamon
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Member
Registered: 11/07/05
Posts: 1096
Loc: West Chester ,PA
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Wow Searcher...this is really scary....I think the woman should call her Doctor and ask he/she what it means..actually the GP should have called her as soon as he/she got the neuro-surgeon's report...don't you agree? What a shame for her...she sounds very naive? I hope you aren't getting too upset about this....you're really sweet trying to help her....but she needs to consult with her physician. Just my thoughts on it
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#10847 - 03/21/06 02:17 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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Avalon,
You are such a nice person...I did talk to her via email and we ended up spending the whole evening going back and forth. Yes, I do think she's naive...She does not have anyone besides her fiance. She's 40 years old....and has had multiple surgeries for this tumor (not unusual, 60% have recurrences. The reason Nichole did not, her neurosurgeon and I agreed there would only be one surgery. Get it all now, or.....she dies on the table.) She needs someone to talk to...and today I noticed some others had replied as well...so I think she's covered about as well as we can provide right now. We promised to stay in touch. She sent me pictures of herself and her fiance. Just the cutest and most adorable couple - ruddy cheeks and all - they're from the UK.....Thanks for your concern, I'll keep you updated....
Search
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#10848 - 03/21/06 02:55 AM
Re: Diabetes-cinnamon
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Member
Registered: 09/20/05
Posts: 2560
Loc: Pagosa Springs, Colorado
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You did good, Searcher! She's in God's hands but you have played a part in how she will live or die. You are a good soul.
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#10849 - 03/21/06 04:46 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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Thank you Blue, but one wonders............
Maybe I can take this time to raise some awareness of this awful and life altering tumor. I'll try to be short, but ya'll know how I am. Firstly, this tumor has been consistent in it's prevalence over the years --- about 97 in all of the US per year. Very low incidence. Because of that, monies are slow to come for research. But much progress has been made in the removal and after effects since Nichole had hers, in 1977. The CAT scan was relatively new then. MRI's didn't come til later. And Nik had a metal staple in her head from the surgery and was never able to take advantage.
Here are just a few of the remaining problems from this surgery that the people face:
1. Many times the tumor causes blindness since it is so near the optic nerve and cuts off blood supply. Nichole was legally blind in one eye, and had no vision in the other.
2. The pituitary (our master gland) is often removed. this leads to: a. no growth hormone. if this happens while young, like Niki, they need growth hormone, given in shots.
b. no antidieuretic hormone. This means they have diabetus insipidus - a condition whereby their pituitary does not instruct their bodies to stop the thirst mechanism nor the release of urine. Think about that. We lived in Chicago at the time, and used say, Nichole would drink Lake Michigan, and then pee it. She would literally kill someone for water - if she had been big enuf. Nowadays, there's some relief for this, but not a cure...It's still an issue for many.
c.No female or male hormone. This means that a child will not develop secondary sex characteristics. No pubic hair, no breasts, no period, no underarm hair... unless provided for by synthetic hormone. Never a replacement for the real thing.
d. No thyroxin. Meaning no thyroid hormone. This has a myriad of meaning. Thyroid controls much of our emotion, much of our temperature control, much of our metabolism. This is a BIG deal. And believe me, no thyroid pill replaces the real thing.
e.Many times the hypothalmus which lies next to the pituitary is compromised also. This is involved in many things, but one is the issue of weight and hunger, and temperature control. Nichole was always freezing. and could never be left in the heat. She had hypothalmic obesity which no one could understand, notwithstanding her local doctors, who I now find, derelict in their understanding of this disease, but also willing to say that they did. I find this apalling. And did so then. They Just couldn't find a way to say, "I just don't know". Even tho the research was there, I KNEW IT, I had done the reading. Why then, didn't they?
f. And then the really biggy, cortisol. This hormone is the one we use for stress. Physical stress and emotional stress. Our bodies continually release cortisol to combat stress. If we are ill, our bodies release cortisol. If we are under stress of any kind, our bodies release cortisol. For Nichole, if she was ill, a cold or flu, (and their bodies immune systems are compromised), we would have to improvise with an injection according to the degree of fever or whatever.... This is most assuredly a task that is overwhelming. to medical staff and to MOMs. Certainly to schools. And most assuredly to local physicians. Nichole had this kind of "failure" at least 4 times.
e. These issues are but a minor explanation of this tumor. It is considered catastophic, and in my estimation, is most assuredly that, and much, much more. The people who have this diagnosis face one of the most difficult in all of humanity, since they don't necessarily die from it readily, but have to live this kind of life for years to come. And so do their caretakers and loved ones. I have often said, there are worse things than death. Altho, at the present time, I wonder.....
Now to add to these dilemmas, Nichole began to have siezures. Serious siezures. Where she would quit breathing and turn blue. Me beating on her chest before i would call 911. For thousands of these, she came back on her own. The last of which, she did not.
I have given you only an inkling of this life with such a tumor removal. Today it is better, but not so much that it's not an issue. These people are still suffering and need our compassion. More than that, they need our help.
Searcher
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#10851 - 03/21/06 07:02 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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Nor would anyone have an idea. And I hope that no other person would ever have to know. But in light of my being a part of this forum, you have all just been part of something that has touched you. Please make an effort to consider this....
Searcher
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#10852 - 03/21/06 08:03 AM
Re: Diabetes-cinnamon
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Member
Registered: 10/22/05
Posts: 254
Loc: ND
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Searcher, I can only say, keep communicating about this. You honor Nichole in helping others who suffer as she did.
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#10853 - 03/21/06 08:53 AM
Re: Diabetes-cinnamon
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Member
Registered: 11/07/05
Posts: 1096
Loc: West Chester ,PA
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Searcher...You did an amazing thing for a troubled soul...now that I am thinking about it...I'll bet you Nichole led her straight to you...the way I see this ...there is ANOTHER chapter for that book you need to write...
I had no idea how rare this disease that changed your family's life is...Life is so fragile isn't it? Is the USA the only nation researching cures for it at this time do you know?
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#10855 - 03/24/06 10:14 PM
Re: Diabetes-cinnamon
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Member
Registered: 10/11/05
Posts: 645
Loc: boise
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Well My Friends,
Thanks for reading about this.....I know it really concerns no one here at the present time and hopefully never....But I think that awareness is always a good thing -- and in some ways, you all have known my Nik, so are concerned after all....
So far, I've only been able to communicate with this one young woman, so no accoulades are deserved!! But this was the defining factor in our lives and surely is theirs....I can't just leave it be. It's just too devastating for anyone out there who might need some support. We didn't get nearly enough (barely any really), and it's too awful to think that someone else might be going thru this alone...or with limited help. Today alone, I received 6 emails from people who are in renal crisis, 3 yesterday, and more from days before...Several emails from those who have the flu (serious business for these people)and one from a Mom whose child needed surgery and the attending "forgot" the child needed extra cortisone before....the child was failing fast when the mother realized she had not asked the doctor if he had given the extra dose. The dose was given, the child survived. Had the mother not remembered, she would have been dead by morning. I'd be changing doctors today!!!!
Avalon, I'm sure you're right that Nichole had something to do with this - at least I hope so.
Dotsie, no one can be too dramatic about this..this is as dramatic as it gets....I always said "Usually, people this ill either get better, or leave this world.." with this serious health issue, many still live on to late years in life - IF they can stay on top of all these issues.....It's possible because we do have cortsone in pill form now and the other hormones as well, it's just the very biggest Managing problem, and from day to day, you just never know..
I truly can't say how we managed. I inherently have "bulldog tenacity" and just won't give up when in other areas, I probably should have. In this case, a good thing.....And anyway, what's the alternative????? But the real thing was that, I loved her. Simple as that. We daily went through some crisis or another, and after siezures began, many times daily. I do think that we always had "SOMEONE" giving us the strength we needed for that day, even when we didn't feel we had any at all....
But also, education is key. Nichole and these others had a health issue so fragile, that it's not possible to live long without learning a great deal about all this...As you well know, Dotsie.
To answer your question, Dotsie, I don't think I really remember what relaxing is. When I am still, I end up thinking about things - replaying scenes of our lives...but at least I am no longer hearing phantom siezures..I used to jump up with my heart beating like crazy and begin to run, only to realize it was just the cat or something....I say I'll never die of a heart attack because it's been tested to beyond it's limits a thousand times a thousand!!!
I'l tell you this and then be quiet. Winston, our 16 year old dog, (if some of you will recall) was getting really bad at the last. Sam and I were here, wondering what we should do, when Winston began having a siezure. Sam grabbed him and held on tight. After, we looked at each other and called the vet. We took him in and put him down right then. That's one thing I don't think either of us will ever be able to survive again.
Thanks for listening
Searcher
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#10856 - 03/24/06 10:24 PM
Re: Diabetes-cinnamon
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Member
Registered: 09/20/05
Posts: 2560
Loc: Pagosa Springs, Colorado
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You summed up how you survived and how you managed with 3 simple words..."I loved her"... that's what life is, always has been and always will be about - LOVE. That "someone" that's been helping you is God, because God IS love. He loves you even more than you loved Nik, if you can only imagine. Not only does He love you, He loves THROUGH you. That's why He trusted you with His Nichole. ((HUGS))
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